Chronic skin conditions are often impossible to ignore. Their visibility draws attention, but paradoxically, those affected often feel invisible. Despite the profound impact these diseases have, many patients are left without the recognition
The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration
My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single
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