10 YEARS OF IAAD: NIAMS UNWEAVERING SUPPORT FORRESEARCH OFFERS A PATHWAY TO ALBINISM STUDIES
Back to school 2024/2025
The Masse World School Supplies Assistance Program eases the stress related to back to school. We provide school supplies to school age children within our demography. Even if they may not express it, children find comfort in the knowledge that they can rely on a bag filled with neatly arranged papers, pens, pencils, pencil sharpener, and […]
Read MoreAugust 2, 2024
World Vitiligo Day – Boots on the Ground: Finding Your Pathway – June 25th, 2024
This year’s topic Boots on the Ground: Finding Your Pathway, represents another powerful ad successful story of resilience, strength and determination from those living with Vitiligo, as we celebrate World Vitiligo Day, this June 25th, 2024. We are reminded that this day serves as a pivotal moment to unite communities worldwide in the fight against […]
Read MoreJune 24, 2024
10 YEARS OF IAAD: NIAMS UNWEAVERING SUPPORT FORRESEARCH OFFERS A PATHWAY TO ALBINISM STUDIES
June 13, 2024, marks a decade since the launch of International Albinism Awareness Day. This year’s theme, “10 years of IAAD: A decade of collective progress,” is an invitation to: → Celebrate the strides made within the movement, with renewed commitment for the future; → Highlight the tireless efforts of albinism groups from around the world; → […]
Read MoreJune 13, 2024
Protect Your Skin, Protect Your Health
Skin Cancer Prevention: People with albinism are at a significantly higher risk of developing skin cancer due to their increased sensitivity to ultraviolet (UV) radiation. The absence of melanin, which provides some protection against UV rays, makes their skin more susceptible to damage from sun exposure. While vitiligo itself does not increase the risk of […]
Read MoreMay 26, 2024
CSD Hill Day 2024 – Briefing Report
The CSD will be hosting an educational briefing for Congress Members and their Staff along with dermatology stakeholders, April 23rd, over the lunch hour from 12:30 – 1:30 pm in the Nancy Pelosi Caucus Room (Cannon Building). The meeting will feature Dr. Lindsey Criswell, Director of NIAMS covering the latest Research Developments in Skin, Dr. […]
Read MoreApril 18, 2024
The 2024 Annual Meeting of the AAD
The 2024 Annual Meeting of the American Academy of Dermatology kicked off at the Convention Center in San Diego, on March 8th, 2024. With a large crowd of partitioners, experts, patients advocate groups and more present for the five days event, the AAD President, Terrence A. Cronin Jr., MD, FAAD, delivered a warm welcoming message. […]
Read MoreMarch 22, 2024
The Story of Merveille Block
While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […]
Read MoreFebruary 28, 2024
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
https://rarediseases.org/organizations/masse-world/
Read MoreFebruary 9, 2024
Special Thanks To Our Partners
As we begin the year 2024, Massé World would like to extend a special thank you to our partners, our members, the community and the organizations who embraced our mission and contributed to our success in 2023. We are excited to continue our journey with all of you in promoting acceptance and fighting the stigma Our […]
Read MoreDecember 31, 2023
Climate change puts people with albinism at grave risk: UN expert
NEW YORK (19 October 2023) – Climate change is having a dangerous impact on people with albinism worldwide, contributing to high rates of skin cancer deaths in some regions, a UN expert said. “The profound impact of climate change on persons with albinism is one of the most overlooked aspects of the issue. In Africa […]
Read MoreNovember 9, 2023
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Vitiligo: The science within the skin
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Striking Reality – Albinism in Nepal
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Children with albinism of Ndikinimeki
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Fight The Stigma With Michael McGowan
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Living Well With Vitiligo – GVF 2023 Atlanta
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The GRIDD Study
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Impact of Skin Disease 2
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Vitiligo: When the Immune System Attacks & Causes Skin Discoloration
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Vitiligo, Causes, Signs and Symptoms, Diagnosis and Treatment.
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More to Life – VITSAF Documentary on Vitiligo.wmv
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World mental Health Day
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NEW VITILIGO TREATMENT|Camouflage Treatment for Vitiligo| Skin Colour-Dr.Amee Daxini|Doctors’ Circle
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Climate change and persons with albinism
While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024
https://rarediseases.org/organizations/masse-world/ February 9, 2024 Massé World is proud to announce its partnership with the Coalition for Skin Disease. This partnership will facilitate and promote better healthcare solutions for those affected with Albinism, Vitiligo, and other skin conditions. November 8, 2023 The Krupala family is proud to announce the birth of their second child, Brynne Krupala. Congratulations to Audrey and Brandon! November 8, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023 The Story of Merveille Block
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
Partnership with the Coalition for Skin Disease
Brooke is a big sister!
Global Mental Health Action Network