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The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration
Research on albinism is crucial for improving the quality of life, health, and social inclusion of individuals with this condition. By studying the genetic causes and visual impairments associated with albinism, such as
Research on vitiligo provides significant benefits, advancing understanding of this complex autoimmune skin condition that causes patches of skin to lose pigment. By investigating the genetic, immunological, and environmental factors involved, researchers can
The Annual Open Enrollment for Medicare began on October 15 and ends on December 7, 2024 for coverage beginning January 1, 2025.The CSD, in partnership with the Medicare Access for Patients Rx (MAPRx) Coalition, has
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