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The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration
My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single
On Wednesday, January 15, 2025, the newly published white paper titled: Rewriting The Vitiligo Patient Experience: Minding The Gaps Of The Vitiligo Pathway was presented to members of the European Parliament in Brussels,
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