Newsroom
- Home Category: Newsroom ( Page 2 )
Despite their distinct medical causes, albinism and vitiligo are often grouped in the public eye, not because they are the same, but because society responds to them in similar ways. Both conditions affect skin pigmentation,
Massé World proudly joins the global vitiligo community in observing World Vitiligo Day. This year’s event will be hosted in Tampa, Florida, and will be more than a celebration. With a focus on
Empowering Difference. Celebrating Dignity.Massé World proudly joins the global community in observing International Albinism Awareness Day (IAAD) on June 13, 2025, under the newly announced theme: “Demanding our rights: Protect our skin, Preserve
The 2025 Coalition for Skin Diseases (CSD) Hill Day, held from May 18 to 20 in Washington, D.C., united over 75 patient advocates, healthcare professionals, and nonprofit organizations to champion the needs of
– Audrey Krupala –My Name is Audrey Krupala. I’m a wife, mother, friend, daughter, and realtor. I’m 35 years old, and I’ve lived with vitiligo since I was 9. Growing up with this
The BIO International Convention will take place from June 16-19, 2025, at the Boston Convention and Exhibition Center. This event is the largest and most comprehensive gathering for biotechnology, expected to host 20,000
Chronic skin conditions are often impossible to ignore. Their visibility draws attention, but paradoxically, those affected often feel invisible. Despite the profound impact these diseases have, many patients are left without the recognition
BEN BROWN: A STORY OF PURE RESILIENCEMy name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important
The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration
My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single
Recent Comments