The BIO International Convention : Boston, June 16-19, 2025
Massé World proudly joins the global vitiligo community in observing World Vitiligo Day. This year’s event will be hosted in Tampa, Florida, and will be more than a celebration. With a focus on self-acceptance, visibility, and global unity, this landmark event will serve as a platform for individuals affected by vitiligo to amplify their voices […] June 14, 2025 Empowering Difference. Celebrating Dignity. Massé World proudly joins the global community in observing International Albinism Awareness Day (IAAD) on June 13, 2025, under the newly announced theme: “Demanding our rights: Protect our skin, Preserve our lives.” This powerful theme highlights the urgent need for equal access to healthcare, protection from harmful UV exposure, and the right […] May 29, 2025 The 2025 Coalition for Skin Diseases (CSD) Hill Day, held from May 18 to 20 in Washington, D.C., united over 75 patient advocates, healthcare professionals, and nonprofit organizations to champion the needs of more than 84 million Americans living with skin diseases. This flagship event focused on urging Congress to enhance access to dermatological care, […] May 29, 2025 – Audrey Krupala – My Name is Audrey Krupala. I’m a wife, mother, friend, daughter, and realtor. I’m 35 years old, and I’ve lived with vitiligo since I was 9. Growing up with this condition wasn’t easy. People could be cruel, and their words and stares often left me feeling isolated and unsure of my […] May 10, 2025 The BIO International Convention will take place from June 16-19, 2025, at the Boston Convention and Exhibition Center. This event is the largest and most comprehensive gathering for biotechnology, expected to host 20,000 industry leaders from around the globe, representing the full ecosystem of biotech. It serves as a platform for networking, showcasing innovations, and […] April 12, 2025 Chronic skin conditions are often impossible to ignore. Their visibility draws attention, but paradoxically, those affected often feel invisible. Despite the profound impact these diseases have, many patients are left without the recognition and support they need. Across Europe alone, 185 million individuals grapple with skin conditions, with nearly half of them experiencing at least […] March 16, 2025 BEN BROWN: A STORY OF PURE RESILIENCE My name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important request that I believe aligns with the values and mission of the 119th Congress, 1st Session’s mission. I grew up in Dickson […] March 5, 2025 The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration between the Center for Biologics Evaluation and Research (CBER) and the Center for Drug Evaluation and Research (CDER) to enhance rare disease […] February 24, 2025 My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single mother after my father married a second wife in 2006. Growing up with albinism was not easy, as many people held […] February 13, 2025 On Wednesday, January 15, 2025, the newly published white paper titled: Rewriting The Vitiligo Patient Experience: Minding The Gaps Of The Vitiligo Pathway was presented to members of the European Parliament in Brussels, in the presence of a representative from the European Commission, a representative from the World Health Organization, and several parliamentary assistants.The paper […] February 5, 2025
– Audrey Krupala – My Name is Audrey Krupala. I’m a wife, mother, friend, daughter, and realtor. I’m 35 years old, and I’ve lived with vitiligo since I was 9. Growing up with this condition wasn’t easy. People could be cruel, and their words and stares often left me feeling isolated and unsure of my […] May 10, 2025 BEN BROWN: A STORY OF PURE RESILIENCE My name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important request that I believe aligns with the values and mission of the 119th Congress, 1st Session’s mission. I grew up in Dickson […] March 5, 2025 My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single mother after my father married a second wife in 2006. Growing up with albinism was not easy, as many people held […] February 13, 2025 While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024
Dear Friends, Partners, and Supporters, As 2024 draws to a close, I am filled with immense gratitude and inspiration for the journey we’ve all shared this year. Together, we have made tremendous strides toward our vision of ending discrimination and stigma and fostering a world of inclusion and understanding for individuals with albinism and vitiligo. […] January 12, 2025 https://rarediseases.org/organizations/masse-world/ February 9, 2024 Massé World is proud to announce its partnership with the Coalition for Skin Disease. This partnership will facilitate and promote better healthcare solutions for those affected with Albinism, Vitiligo, and other skin conditions. November 8, 2023 The Krupala family is proud to announce the birth of their second child, Brynne Krupala. Congratulations to Audrey and Brandon! November 8, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023 
World Vitiligo Day 2025 – BEYOND THE SURFACE: REDEFINING VITILIGO
International Albinism Awareness Day (IAAD) 2025
ONE VOICE: HILL DAY 2025
UNSHAKEN: A MOTHER’S STRENGTH BEYOND SKIN — “VITILIGO DOES NOT DEFINE ME”
The BIO International Convention : Boston, June 16-19, 2025
How to Improve the Vitiligo Patient Pathway: A Research-Based Book
EMBRACING MY HIGHER-SELF
FDA’s Rare Disease Innovation Hub Releases 2025 Strategic Agenda
Meshack Sisenda Story
Rewriting The Vitiligo Patient Experience: Minding The Gaps Of The Vitiligo Pathway
Reaction de Merveille
Meshack Sisenda
Reaction de Mama Christine la Mère de Merveille
Compte Rendu de la Visite de l’Équipe MASSÉ WORLD
Blessing Nabila
seigning Laurette
madame ETOUA EKABE carine enseignante et directri
Madame TCHATAT pèlerine avocat
Tikamen leina sella
MOUZONG A Kessen fidèle Landry délégué département
MasseWorld Ben Brown
NEW VITILIGO TREATMENT|Camouflage Treatment for Vitiligo| Skin Colour-Dr.Amee Daxini|Doctors’ Circle
Vitiligo: The science within the skin
Striking Reality – Albinism in Nepal
Children with albinism of Ndikinimeki
Fight The Stigma With Michael McGowan
Living Well With Vitiligo – GVF 2023 Atlanta
Impact of Skin Disease 2
The GRIDD Study
Vitiligo: When the Immune System Attacks & Causes Skin Discoloration
Vitiligo, Causes, Signs and Symptoms, Diagnosis and Treatment.
More to Life – VITSAF Documentary on Vitiligo.wmv
World mental Health Day
Climate change and persons with albinism
UNSHAKEN: A MOTHER’S STRENGTH BEYOND SKIN — “VITILIGO DOES NOT DEFINE ME”
EMBRACING MY HIGHER-SELF
Meshack Sisenda Story
The Story of Merveille Block
MASSE WORLD 2024 ANNUAL REPORT
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
Partnership with the Coalition for Skin Disease
Brooke is a big sister!
Global Mental Health Action Network
Make a Difference Today! Become a Volunteer