The BIO International Convention : Boston, June 16-19, 2025
The BIO International Convention will take place from June 16-19, 2025, at the Boston Convention and Exhibition Center. This event is the largest and most comprehensive gathering for biotechnology, expected to host 20,000 industry leaders from around the globe, representing the full ecosystem of biotech. It serves as a platform for networking, showcasing innovations, and […] April 12, 2025 Chronic skin conditions are often impossible to ignore. Their visibility draws attention, but paradoxically, those affected often feel invisible. Despite the profound impact these diseases have, many patients are left without the recognition and support they need. Across Europe alone, 185 million individuals grapple with skin conditions, with nearly half of them experiencing at least […] March 16, 2025 BEN BROWN: A STORY OF PURE RESILIENCE My name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important request that I believe aligns with the values and mission of the 119th Congress, 1st Session’s mission. I grew up in Dickson […] March 5, 2025 The FDA’s Rare Disease Innovation Hub (Hub) has released its Strategic Agenda, detailing its first-year actions and engagement with the rare disease community while clarifying its structure and programs. The Hub fosters collaboration between the Center for Biologics Evaluation and Research (CBER) and the Center for Drug Evaluation and Research (CDER) to enhance rare disease […] February 24, 2025 My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single mother after my father married a second wife in 2006. Growing up with albinism was not easy, as many people held […] February 13, 2025 On Wednesday, January 15, 2025, the newly published white paper titled: Rewriting The Vitiligo Patient Experience: Minding The Gaps Of The Vitiligo Pathway was presented to members of the European Parliament in Brussels, in the presence of a representative from the European Commission, a representative from the World Health Organization, and several parliamentary assistants.The paper […] February 5, 2025 Dear Friends, Partners, and Supporters, As 2024 draws to a close, I am filled with immense gratitude and inspiration for the journey we’ve all shared this year. Together, we have made tremendous strides toward our vision of ending discrimination and stigma and fostering a world of inclusion and understanding for individuals with albinism and vitiligo. […] January 12, 2025 The story of Massé World began with a vision to address the profound challenges faced by people with albinism and vitiligo in the United States, Africa, and Southeast Asia. These communities often experience deep-rooted social stigma, discrimination, and limited access to essential resources. Founded by individuals who recognized the urgent need for advocacy and support, […] December 27, 2024 2025 THEME. This theme embodies our steadfast commitment to empowering individuals with albinism and vitiligo to rise above societal barriers and celebrate their unique beauty and potential. It serves as a call to action to shift perspectives, confront biases, and create a world where acceptance flourishes and differences are valued. By means of innovative programs, […] December 27, 2024 Research on albinism is crucial for improving the quality of life, health, and social inclusion of individuals with this condition. By studying the genetic causes and visual impairments associated with albinism, such as nystagmus and reduced melanin affecting vision and skin protection, researchers can develop targeted treatments and interventions. Advances in understanding albinism also help […] December 8, 2024
BEN BROWN: A STORY OF PURE RESILIENCE My name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important request that I believe aligns with the values and mission of the 119th Congress, 1st Session’s mission. I grew up in Dickson […] March 5, 2025 My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single mother after my father married a second wife in 2006. Growing up with albinism was not easy, as many people held […] February 13, 2025 While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024
Dear Friends, Partners, and Supporters, As 2024 draws to a close, I am filled with immense gratitude and inspiration for the journey we’ve all shared this year. Together, we have made tremendous strides toward our vision of ending discrimination and stigma and fostering a world of inclusion and understanding for individuals with albinism and vitiligo. […] January 12, 2025 https://rarediseases.org/organizations/masse-world/ February 9, 2024 Massé World is proud to announce its partnership with the Coalition for Skin Disease. This partnership will facilitate and promote better healthcare solutions for those affected with Albinism, Vitiligo, and other skin conditions. November 8, 2023 The Krupala family is proud to announce the birth of their second child, Brynne Krupala. Congratulations to Audrey and Brandon! November 8, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023 
The BIO International Convention : Boston, June 16-19, 2025
How to Improve the Vitiligo Patient Pathway: A Research-Based Book
EMBRACING MY HIGHER-SELF
FDA’s Rare Disease Innovation Hub Releases 2025 Strategic Agenda
Meshack Sisenda Story
Rewriting The Vitiligo Patient Experience: Minding The Gaps Of The Vitiligo Pathway
MASSE WORLD 2024 ANNUAL REPORT
From Shadows to Strength: The vision of Massé World in Championing – Acceptance and Empowerment
TRANSFORMING STIGMAS INTO STRENGT
Research Progress Related to albinism
Blessing Nabila
seigning Laurette
madame ETOUA EKABE carine enseignante et directri
Madame TCHATAT pèlerine avocat
MasseWorld Ben Brown
NEW VITILIGO TREATMENT|Camouflage Treatment for Vitiligo| Skin Colour-Dr.Amee Daxini|Doctors’ Circle
Vitiligo: The science within the skin
Striking Reality – Albinism in Nepal
Children with albinism of Ndikinimeki
Fight The Stigma With Michael McGowan
Living Well With Vitiligo – GVF 2023 Atlanta
Impact of Skin Disease 2
The GRIDD Study
Vitiligo: When the Immune System Attacks & Causes Skin Discoloration
Vitiligo, Causes, Signs and Symptoms, Diagnosis and Treatment.
More to Life – VITSAF Documentary on Vitiligo.wmv
World mental Health Day
Climate change and persons with albinism
Unlocking the Secrets of Vitiligo: The VIGOR Study Explained
Tikamen leina sella
MOUZONG A Kessen fidèle Landry délégué département
Thierry Megnimo
CM Testimony 04
CM Testimony 02
EMBRACING MY HIGHER-SELF
Meshack Sisenda Story
The Story of Merveille Block
MASSE WORLD 2024 ANNUAL REPORT
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
Partnership with the Coalition for Skin Disease
Brooke is a big sister!
Global Mental Health Action Network
Make a Difference Today! Become a Volunteer