Same Difference: Albinism and Vitiligo
Global strategy on digital health 2020-2025 ISBN 978-92-4-002092-4 (electronic version) ISBN 978-92-4-002093-1 (print version) © World Health Organization 2021 Some rights reserved. This work is available under the Creative Commons Attribution-NonCommercialShareAlike 3.0 IGO licence (CC BY-NC-SA 3.0 IGO; https://creativecommons.org/licenses/by-nc-sa/3.0/igo). Under the terms of this licence, you may copy, redistribute and adapt the work for non-commercial […] July 2, 2025 © World Health Organization 2014 All rights reserved. Publications of the World Health Organization are available on the WHO website (www.who.int) or can be purchased from WHO Press, World Health Organization, 20 Avenue Appia, 1211 Geneva 27, Switzerland (tel.: +41 22 791 3264; fax: +41 22 791 4857; e-mail: bookorders@who.int). Requests for permission to reproduce […] July 2, 2025 Pillar 4: More effective and efficient WHO providing better support to countries 11. Review of and update on matters considered by the Executive Board 11.1 Governance reform → Secretariat implementation plan on reform (decision WHA75(8) (2022)) 1. The Executive Board at its 156th session noted the report on the Secretariat implementation plan on reform2 and […] July 2, 2025 World report on vision ISBN978-92-4-151657-0 © World Health Organization 2019 Some rights reserved. This work is available under the Creative Commons Attribution-NonCommercial-ShareAlike 3.0 IGO licence (CC BY-NC-SA 3.0 IGO; https://creativecommons.org/licenses/by-nc-sa/3.0/igo). Under the terms of this licence, you may copy, redistribute and adapt the work for non-commercial purposes, provided the work is appropriately cited, as indicated […] July 2, 2025 New guideline calls for improved global access to controlled medicines The World Health Organization (WHO) has released a rapid communication outlining its new guideline on balanced national policies for controlled medicines. The guideline was officially presented during a high-level side event at the Seventy-eighth World Health Assembly. It is designed to support countries in ensuring […] July 2, 2025 The Executive Board, having considered the report by the Director-General, Decided to recommend to the Seventy-eighth World Health Assembly the adoption of the following resolution: → The Seventy-eighth World Health Assembly, → Having considered the report by the Director-General; Having considered also the World report on vision2 and the World report on hearing3 and recalling […] July 2, 2025 50th session of the Human Rights Council Panel discussion on menstrual hygiene management, human rights and gender equality Menstrual Health is firmly on the global agenda today. Menstrual Health was not on the agenda of the International Conference on the Population and Development or the Millennium Declaration. Nor it is explicitly stated in the Sustainable […] July 2, 2025 Despite their distinct medical causes, albinism and vitiligo are often grouped in the public eye, not because they are the same, but because society responds to them in similar ways. Both conditions affect skin pigmentation, challenging traditional notions of beauty and “normalcy.” They are same in how they impact self-esteem, social interactions, and mental health, yet different in their […] July 1, 2025 Massé World proudly joins the global vitiligo community in observing World Vitiligo Day. This year’s event will be hosted in Tampa, Florida, and will be more than a celebration. With a focus on self-acceptance, visibility, and global unity, this landmark event will serve as a platform for individuals affected by vitiligo to amplify their voices […] June 14, 2025 Empowering Difference. Celebrating Dignity. Massé World proudly joins the global community in observing International Albinism Awareness Day (IAAD) on June 13, 2025, under the newly announced theme: “Demanding our rights: Protect our skin, Preserve our lives.” This powerful theme highlights the urgent need for equal access to healthcare, protection from harmful UV exposure, and the right […] May 29, 2025
– Audrey Krupala – My Name is Audrey Krupala. I’m a wife, mother, friend, daughter, and realtor. I’m 35 years old, and I’ve lived with vitiligo since I was 9. Growing up with this condition wasn’t easy. People could be cruel, and their words and stares often left me feeling isolated and unsure of my […] May 10, 2025 BEN BROWN: A STORY OF PURE RESILIENCE My name is Arthur Benjamin Brown, though my friends call me Brother Ben, and I am reaching out to you with a personal story and an important request that I believe aligns with the values and mission of the 119th Congress, 1st Session’s mission. I grew up in Dickson […] March 5, 2025 My name is Meshack Sisenda, and I was born and raised in Kitale, Trans-Nzoia County, Kenya. I am the only child with albinism in a family of three children, raised by a single mother after my father married a second wife in 2006. Growing up with albinism was not easy, as many people held […] February 13, 2025 While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024
Dear Friends, Partners, and Supporters, As 2024 draws to a close, I am filled with immense gratitude and inspiration for the journey we’ve all shared this year. Together, we have made tremendous strides toward our vision of ending discrimination and stigma and fostering a world of inclusion and understanding for individuals with albinism and vitiligo. […] January 12, 2025 https://rarediseases.org/organizations/masse-world/ February 9, 2024 Massé World is proud to announce its partnership with the Coalition for Skin Disease. This partnership will facilitate and promote better healthcare solutions for those affected with Albinism, Vitiligo, and other skin conditions. November 8, 2023 The Krupala family is proud to announce the birth of their second child, Brynne Krupala. Congratulations to Audrey and Brandon! November 8, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023
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