2025 Medicare Enrollment Resources
Research on albinism is crucial for improving the quality of life, health, and social inclusion of individuals with this condition. By studying the genetic causes and visual impairments associated with albinism, such as nystagmus and reduced melanin affecting vision and skin protection, researchers can develop targeted treatments and interventions. Advances in understanding albinism also help […] December 8, 2024 Research on vitiligo provides significant benefits, advancing understanding of this complex autoimmune skin condition that causes patches of skin to lose pigment. By investigating the genetic, immunological, and environmental factors involved, researchers can develop more effective treatments and potential cures, improving quality of life for those affected. Additionally, research helps to raise awareness, reduce stigma, […] December 8, 2024 The Annual Open Enrollment for Medicare began on October 15 and ends on December 7, 2024 for coverage beginning January 1, 2025. The CSD, in partnership with the Medicare Access for Patients Rx (MAPRx) Coalition, has created a Medicare Part D prescription drug open enrollment guide and patient guide for our members, as well as an infographic. Congress recently made changes to […] October 28, 2024 Overview In 2022, the Member States of WHO South-East Asia Region committed to promote and facilitate access to community-based mental health services through the adoption of the Paro Declaration on universal access to people-centred mental health care and services (2). The adoption of this declaration was followed by the Mental health action plan for the […] October 10, 2024 The Masse World School Supplies Assistance Program eases the stress related to back to school. We provide school supplies to school age children within our demography. Even if they may not express it, children find comfort in the knowledge that they can rely on a bag filled with neatly arranged papers, pens, pencils, pencil sharpener, and […] August 2, 2024 This year’s topic Boots on the Ground: Finding Your Pathway, represents another powerful ad successful story of resilience, strength and determination from those living with Vitiligo, as we celebrate World Vitiligo Day, this June 25th, 2024. We are reminded that this day serves as a pivotal moment to unite communities worldwide in the fight against […] June 24, 2024 June 13, 2024, marks a decade since the launch of International Albinism Awareness Day. This year’s theme, “10 years of IAAD: A decade of collective progress,” is an invitation to: → Celebrate the strides made within the movement, with renewed commitment for the future; → Highlight the tireless efforts of albinism groups from around the world; → […] June 13, 2024 Skin Cancer Prevention: People with albinism are at a significantly higher risk of developing skin cancer due to their increased sensitivity to ultraviolet (UV) radiation. The absence of melanin, which provides some protection against UV rays, makes their skin more susceptible to damage from sun exposure. While vitiligo itself does not increase the risk of […] May 26, 2024 The CSD will be hosting an educational briefing for Congress Members and their Staff along with dermatology stakeholders, April 23rd, over the lunch hour from 12:30 – 1:30 pm in the Nancy Pelosi Caucus Room (Cannon Building). The meeting will feature Dr. Lindsey Criswell, Director of NIAMS covering the latest Research Developments in Skin, Dr. […] April 18, 2024 The 2024 Annual Meeting of the American Academy of Dermatology kicked off at the Convention Center in San Diego, on March 8th, 2024. With a large crowd of partitioners, experts, patients advocate groups and more present for the five days event, the AAD President, Terrence A. Cronin Jr., MD, FAAD, delivered a warm welcoming message. […] March 22, 2024
While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024
https://rarediseases.org/organizations/masse-world/ February 9, 2024 Massé World is proud to announce its partnership with the Coalition for Skin Disease. This partnership will facilitate and promote better healthcare solutions for those affected with Albinism, Vitiligo, and other skin conditions. November 8, 2023 The Krupala family is proud to announce the birth of their second child, Brynne Krupala. Congratulations to Audrey and Brandon! November 8, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023
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Research Progress Related to albinism
Research Progress Related to Vitiligo
2025 Medicare Enrollment Resources
Community-based mental health services in the WHO South-East Asia Region
Back to school 2024/2025
World Vitiligo Day – Boots on the Ground: Finding Your Pathway – June 25th, 2024
10 YEARS OF IAAD: NIAMS UNWEAVERING SUPPORT FORRESEARCH OFFERS A PATHWAY TO ALBINISM STUDIES
Protect Your Skin, Protect Your Health
CSD Hill Day 2024 – Briefing Report
The 2024 Annual Meeting of the AAD
Vitiligo: The science within the skin
Striking Reality – Albinism in Nepal
Children with albinism of Ndikinimeki
Fight The Stigma With Michael McGowan
Living Well With Vitiligo – GVF 2023 Atlanta
The GRIDD Study
Impact of Skin Disease 2
Vitiligo: When the Immune System Attacks & Causes Skin Discoloration
Vitiligo, Causes, Signs and Symptoms, Diagnosis and Treatment.
More to Life – VITSAF Documentary on Vitiligo.wmv
World mental Health Day
NEW VITILIGO TREATMENT|Camouflage Treatment for Vitiligo| Skin Colour-Dr.Amee Daxini|Doctors’ Circle
Climate change and persons with albinism
Unlocking the Secrets of Vitiligo: The VIGOR Study Explained
The Story of Merveille Block
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
Partnership with the Coalition for Skin Disease
Brooke is a big sister!
Global Mental Health Action Network
Make a Difference Today! Become a Volunteer
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