TRANSFORMING STIGMAS INTO STRENGT
Skin Cancer Prevention: People with albinism are at a significantly higher risk of developing skin cancer due to their increased sensitivity to ultraviolet (UV) radiation. The absence of melanin, which provides some protection against UV rays, makes their skin more susceptible to damage from sun exposure. While vitiligo itself does not increase the risk of […] May 26, 2024 The CSD will be hosting an educational briefing for Congress Members and their Staff along with dermatology stakeholders, April 23rd, over the lunch hour from 12:30 – 1:30 pm in the Nancy Pelosi Caucus Room (Cannon Building). The meeting will feature Dr. Lindsey Criswell, Director of NIAMS covering the latest Research Developments in Skin, Dr. […] April 18, 2024 The 2024 Annual Meeting of the American Academy of Dermatology kicked off at the Convention Center in San Diego, on March 8th, 2024. With a large crowd of partitioners, experts, patients advocate groups and more present for the five days event, the AAD President, Terrence A. Cronin Jr., MD, FAAD, delivered a warm welcoming message. […] March 22, 2024 While we may speak on success and the impact that Massé World has on those around the globe, we seldom highlight the resilience and strength that people with albinism and vitiligo have when facing discrimination, bullying, and even abuse by their environment. A young girl who embodies strength and resilience is Ngo Block, or Merveille, […] February 28, 2024 https://rarediseases.org/organizations/masse-world/ February 9, 2024 As we begin the year 2024, Massé World would like to extend a special thank you to our partners, our members, the community and the organizations who embraced our mission and contributed to our success in 2023. We are excited to continue our journey with all of you in promoting acceptance and fighting the stigma Our […] December 31, 2023 NEW YORK (19 October 2023) – Climate change is having a dangerous impact on people with albinism worldwide, contributing to high rates of skin cancer deaths in some regions, a UN expert said. “The profound impact of climate change on persons with albinism is one of the most overlooked aspects of the issue. In Africa […] November 9, 2023 SCHOLARSHIP Scholarship Program allows children suffering from albinism or vitiligo to achieve their educational goal, whether studying in a traditional classroom setting or online due to the medical stigmatization caused by their conditions. SCHOOL SUPPLIES ASSISTANCE School Supplies Assistance Program eases the stress related to back to school. With this program, we provide school […] November 8, 2023 The 78th session of the United Nations General Assembly (UNGA78) opened in New York on September 5, 2023, with High-Level activities scheduled for the week of September 18-22 during which hundreds of heads of state and government officials, aid agencies, and civil society organizations convene to organize and participate inside events and otherwise engage with […] October 27, 2023 Massé World is proud to announce that it is now a member of the Global Mental Health Action Network, a community of advocates, focused on building the political and social will to make mental health services accessible globally. October 20, 2023
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Protect Your Skin, Protect Your Health
CSD Hill Day 2024 – Briefing Report
The 2024 Annual Meeting of the AAD
The Story of Merveille Block
Find Massé World listed in the National registry for Rare Disease Patient Organizations (NORD)
Special Thanks To Our Partners
Climate change puts people with albinism at grave risk: UN expert
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Massé World and the UNGA
Global Mental Health Action Network
Vitiligo: The science within the skin
Striking Reality – Albinism in Nepal
Children with albinism of Ndikinimeki
Fight The Stigma With Michael McGowan
Living Well With Vitiligo – GVF 2023 Atlanta
The GRIDD Study
Impact of Skin Disease 2
Vitiligo: When the Immune System Attacks & Causes Skin Discoloration
Vitiligo, Causes, Signs and Symptoms, Diagnosis and Treatment.
More to Life – VITSAF Documentary on Vitiligo.wmv
World mental Health Day
NEW VITILIGO TREATMENT|Camouflage Treatment for Vitiligo| Skin Colour-Dr.Amee Daxini|Doctors’ Circle
Climate change and persons with albinism
Unlocking the Secrets of Vitiligo: The VIGOR Study Explained
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